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Hello world!
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Firstly, there are no reports of the antiviral medication triggering GBS. Secondly, there is nothing about the medication that would make me expect it to be able to trigger GBS. And, thirdly and most importantly, because GBS is an immune illness the disease doesn’t come on until 10-20 days after the triggering event whereas your GBS came on 24 hours after taking the medication. So we can be confident that in your case the medicationn did not trigger your GBS.
in reply to: Pfizer Covid Anti Viral Medication
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Hi Shane: Sorry to hear you are having such a difficult time. Intermittent tingling and a sense of overwhelming fatigue do occur quite commonly after GBS, even when strength has recovered. It is a bit unusual for things to fluctuate so much with some near-normal days and others where you are seriously affected but I think it is most likely that what you are experiencing now is the result of that previous GBS. A much more difficult question is what can be done about it. Unfortunately, not much. I am going to ask my colleague, Dr Suzie Mudge to give you some advice about the fatigue management. Otherwise, it is just a matter of being patient. You are not yet a year out from your GBS attack and improvement is going to continue. It may take 2 years or even more before you get maximal recovery. I don’t know where you live but getting hooked up with a local support group can really help by seeing that others have had similar experiences and have come through it eventually. Gareth
in reply to: What to do
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Dear Sir: I am not sure what it is that you need help with. If you had GBS in 2022 there is no treatment that would help at this stage. If you continue to have problems it may be because you are one of the 20%-30% of GBS patients who have incomplete recovery or it is possible that you have a related disease called CIDP which would require specific treatment. If you could give me more details about how GBS affected you< what treatment you received (if any) and what difficulties you are having I may be able to give you some advice.
in reply to: Hello
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Unfortunately, very large international studies showed that there was no link between the Pfizer COVID vaccine and GBS. There was a small association with the Johnson and Johnson and Astrazeneca vaccines but those were rarely used in NZ. It is impossible to say whether an individual GBS case was linked to the vaccine even though there is a persuasive temporal association in your case. ACC takes its guidance from the studies showing no link and consistently declines coverage. I know of no neurologists in NZ who are willing to support and ACC application. A few individual GPs have tried but with very little success. There is one person in Christchurch who apparently was successful. You may be able to contact him through Tony Pearson, Secretary of the GBS Support Group Trust.
in reply to: Has anyone successfully claimed through ACC?
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Unfortunaately, it is nearly impossible to get ACC support for issues relating to GBS. Some individuals have succeeded when GBS has followed vaccination but even those are rare. GBS is an autoimmune disease and as such is not considered to be accixdent related.
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